After struggling through phase 1 with only 2 proteins and 2 veggies (I ate a lot of bananas and pecans), I must say that it was well worth it. I have literally no bloating when I’m done a meal and I’ve lost about 3 to 4 lbs and can finally fit into a bridesmaid dress I need to wear in a month.
The first 3 to 6 days are brutal on phase 1. I actually felt worse for 4 days. On the 5th day everything changed. I felt absolutely wonderful for the first time. I’m not proud of this, but I forgot to take my meds because I felt so much like my old self!
I’m now 3 days into phase 2 and I’ve introduced clams and mushrooms. I’m preparing scallops and broiled cod tonight with fresh ginger and mushroom spinach. Tomorrow I will have some pickled beets!
I seriously feel wonderful. I hope this continues. Here’s the remaining list of phase 2 items I’ll be introducing over the next 15 days:
So many favorites coming back into my diet. Hoping they will get to stay!
Until next time, here’s some food I’ve been eating on the LEAP program:
The best way to predict the future is to create it. – Peter Drucker
I’m going to keep this one short as I am heading out tonight to the shore. I’ve been feeling pretty damn good in terms of symptoms. I am exactly one week off prednisone and was originally terrified as to what would happen to me once I came off.
In terms of the vaping itself, I have one minor complaint. Either from the alcohol or the high nicotine level, I have had some irritation in my mouth that caused canker sores and some swelling under my tongue. And, it’s painful. I’ve been rinsing my mouth and brushing more often and this seems to help. I did hear that this is actually common.
I thought that perhaps I’ve had a reaction to the alcohol in The Lazy Iguana and the In The Raw juices, so I tried the alcohol free e-gel. I suppose we shall see. I think my sweet spot is going to be 12mg. Unfortunately Kind Juice doesn’t currently make the e-gel in 12mg. Insert super sad face.
Know any organic, VG only, alcohol free suppliers? Comment below.
I’m continuing on my SCD journey and having fun with creating dishes that are both pretty and tasty. I feel pretty good overall – my focus at work is back, I feel more confident heading out and about, and I’ve yet to have any significant detours in my symptoms from the UC.
I think I’ll update at the 30 day mark unless something worthy of mentioning occurs. Until then…
Without deviation from the norm, progress is not possible. – Frank Zappa
Here I am on day 5 of my nicotine experiment and I couldn’t wait to update my status. I feel great. And, most importantly, confident.
On days 1 through 3 I used the 7mg patch. As of yesterday, day 4, I moved on to the 14mg patch. I had a tiny bit of nausea today that went away within a half hour. This occurred around noon. The ravenous hunger from prednisone Satan’s tic-tacs? Immediately gone. The mood swings from prednisone Satan’s tic-tacs? Gone. The weird breakout under my left arm? Still here (thanks, pred).
In the meantime, I decided that I will switch to vaping as of Saturday the 22nd. It took a lot for me to make this decision as I had originally intended to use the patch only, but my decision is based on having more control of my dosage and cost effectiveness.
My plan, or hope, for all of this is:
Come completely off of prednisone successfully (22nd)
Get my LEAP/MRT food sensitivity testing (26th)
Stay on mesalamine (4.8gm oral + rectal)
Stay on the Specific Carbohydrate diet on a fanatic level
Combine my LEAP/MRT results with SCD
Gradually reduce my oral mesalamine dosage in approximately 6 months*
Reducing 1 pill every month*
Gradually reduce frequency of rectal mesalamine*
Every other day, every two days, etc*
Gradually reduce nicotine dosage*
18mg at the highest level, dropping by 3mg each month or so*
See if I can maintain remission solely on the Specific Carbohydrate diet and LEAP/MRT results*
Redo the LEAP/MRT blood work as needed
Our bodies change every so many years
*Pending inflammation test results and symptom status.
I will also be weaning myself off of PPI’s (Prilosec) as I have done in the past. This one is pretty tough to do, but I have a plan (of course). I am hoping that the food sensitivity panel will help my GERD as well as my dermographia, asthma (allergic), and generally horrible seasonal allergies. I’m trying to take out all of these MTHFRs!
Speaking of MTHFRs, I also sent in my 23andMe sample yesterday. This will show me if I have any of 3 specific genetic mutations related to GI issues and allow me to better guide my eating habits. I can’t wait to see!
I did a lot of research to find a vape juice I can use on SCD. Here is what I ended up with and I am excited to try it. They have a flavorless nicotine juice and use only VG: https://www.kindjuice.com/.B My boyfriend gave me an old mod he had, but I also purchased a smaller vape pen called the Rocket 3 from https://www.vaporfi.com/.
After much thought, I decided to try Nicotine Replacement Therapy (NRT) to supplement my current diet, medication, and holistic treatment plan. Here is how I arrived at this decision:
I was diagnosed at the end of January 2017. In April, my symptoms worsened and my disease worsened. This was confirmed when oral mesalamine worked immediately. Sadly it only lasted 3 weeks. In May, I spiraled into another flare much like the April experience. Both times during the week of my ovulation (I am taking oral contraceptives). I ended up in the hospital for 4 days and left on 40mg prednisone tapering by 5mg each week until July 22nd.
I’m a little worried about what will happen when the taper ends and I am trying to hold off on the biologics (Remicade) that my doctor believes I need to be on until if and when it truly is my last resort. I’m doing strict SCD and will combine it with the LEAP/MRT food sensitivity results to target and avoid foods that may be causing inflammatory reactions in my body. B For now, I am avoiding nightshades and high histamine foods until I have a better idea of what is going on.
My diet before diagnosis was one of the healthiest options in existence. I was pescetarian and following an otherwise Mediterranean style diet under the guidance of a dietitian. I barely ate any complex carbs or grains and my sugar consumption was nearly nonexistent. This tells me that something else is going on behind the scenes and I won’t be shocked if the blood work shows that I have sensitivities to many foods considered “healthy.”
I was a smoker from the age of 14 to the age of 30. In my early 20’s I started to think I had IBS. I always said I had a weak stomach and would avoid spicy foods and other items I noticed bothered me. I took a probiotic by Jarrow Formulas called L. Plantarum and it pretty much fixed whatever issues I thought I had. So, I carried on.
In August of 2016, I started having minor symptoms that we blamed on my heavy lifting regimen at the gym. I was told to lay off heavy, weight-bearing workouts. In December, more (scary) symptoms emerged and I could no longer accept that this was from exercising. I requested a colonoscopy. (At this appointment I told the doctor that, given my medical history and current symptoms, I believed I had IBD – specifically ulcerative colitis. He said he thought I had IBS. I disagreed, but said I hoped he’d be correct. Guess we know how that turned out).
Research shows a positive correlation between nicotine (or cigarette use) and ulcerative colitis symptom control and even remission.
Preliminary, uncontrolled observations employing nicotine gum, a pharmaceutical form generally poorly tolerated, yielded encouraging but inconclusive results. The introduction of trans-dermal nicotine in the market made it possible to assess the potential therapeutic role of nicotine in a more extensive way. Access the study here.
Nicotine is not yet considered to be a carcinogen and may, in fact, have therapeutic potential as a neuroprotective and anti-inflammatory agent. Access the study here.
Because most current smokers with UC have inactive disease, smoking may contribute to the clinical remission in these patients.B Access the study here.
Low-dose smoking resumption in refractory UC patients who are ex-smokers may ameliorate signs and symptoms of inflammation and have a safety profile that is at least comparable with long term corticosteroids, immunosuppressants, and biologics. This approach represents an unconventional therapeutic intervention that seems suitable only for a specific subgroup of patients.B Access the study here.
I also stumbled upon a few personal testimonials of individuals who have attempted this somewhat successfully and others who weren’t successful. I won’t be listing those here as they are relatively easily found online.
So, what do I really have to lose by slapping on a little nicotine patch as a personal self-study for a bit? Nothing, honestly.
In fact, if it works, I get to avoid all kinds of fun and exciting side effects from taking Remicade. See list below.B Click here for the full list and source.
The following serious (sometimes fatal) side effects have been reported:
Infections (like TB, blood infections, pneumonia)b fever, tiredness, cough, flu, or warm, red or painful skin or any open sores
Lymphoma, or any other cancers
Reactivation of HBV
Nervous system disorders
Allergic reactions during or after the infusion
The more common side effects are respiratory infections (that may include sinus infections and sore throat), headache, rash, coughing and stomach pain
In comparison, here are the possible side effects from theB nicotine patches (I am usingB Habitrol brand):