UC Remission Status Update

Please don’t mind any misspelled words or poor grammar as I type this on my cell phone. I recently had my 6 month GI visit in April and wanted to share the results. Thus far, everything is looking good. I requested a fecal calprotectin test (which apparently I’ll be paying for out of pocket), and I scored <16 – which is basically what someone without IBD would score.

I was so happy you would have thought I won the lottery.

At my appointment, I discussed eventually getting off the mesalamine oral meds, but my doctor was not too happy with the idea. She said I have a much higher chance of keeping my risk for colon cancer low by staying on them as well as maintaining remission. At the very least, I will be attempting to get down to a maintenance dose eventually.

I’ve finally gotten back into the gym again and I’m trying to stay consistent. The DOMS (delayed onset muscle soreness) is so much worse now with the IBD and the fatigue can be worsened if I don’t watch myself. But, I’m going slow and paying attention to what my body is telling me. I figured the least I can do right now is try to take advantage of how low my weight is (finally normal and stable) and tone up to look good in a bikini again.

Obviously there are benefits to working out besides looks – and I’m speaking to weight lifting specifically here. The emotional impact is amazing and I’ve missed it dearly.

After almost exactly a year from being hospitalized for this disease, I have finally begun to feel like myself again. For a long time I have lived with a cloud over my head wondering when I would be struck down again and hospitalized. That’s not like me and I’m happy it’s lifting.

I successfully went on my first extended trip away from home and brought my own food. I survived. Now, I look forward to my trip in October to the SCD Rocks Conference on Westport, MA and my trip right after to Salem, MA. We will be planning a cruise soon as well. I NEED A BEACHY VACATION!

Anyway, thanks for reading. Here are some of my lab results:

LEAP Diet Phase 2

After struggling through phase 1 with only 2 proteins and 2 veggies (I ate a lot of bananas and pecans), I must say that it was well worth it. I have literally no bloating when I’m done a meal and I’ve lost about 3 to 4 lbs and can finally fit into a bridesmaid dress I need to wear in a month.

The first 3 to 6 days are brutal on phase 1. I actually felt worse for 4 days. On the 5th day everything changed. I felt absolutely wonderful for the first time. I’m not proud of this, but I forgot to take my meds because I felt so much like my old self!

I’m now 3 days into phase 2 and I’ve introduced clams and mushrooms. I’m preparing scallops and broiled cod tonight with fresh ginger and mushroom spinach. Tomorrow I will have some pickled beets!

I seriously feel wonderful. I hope this continues. Here’s the remaining list of phase 2 items I’ll be introducing over the next 15 days:

  • Shrimp
  • Lentils
  • Broccoli
  • Green peas
  • Canteloupe
  • Pear
  • Raspberry
  • Olive
  • Pistachio
  • Hazelnuts
  • Peanut
  • Paprika
  • Mustard
  • Oregano

So many favorites coming back into my diet. Hoping they will get to stay!

Until next time, here’s some food I’ve been eating on the LEAP program:

LEAP Diet Phase 1

I recently completedB LEAP food sensitivyB testing bloodwork and today is the first day of phase 1. For the next 10 days, my food options include only the following items:

  • Codfish
  • Sole
  • Lettuce
  • Spinach
  • Mango
  • Grape
  • Plum
  • Pineapple
  • Banana
  • Avocado
  • Papaya
  • Coffee
  • Pecan
  • Vanilla
  • Parsley
  • Cumin
  • Ginger
  • Distilled vinegar
  • Baking soda

After 10 days of eating practically nothing, I will begin adding in 1 food item a day from 1 section in phase 2 and so on until I’ve completed phase 5 and know exactly which foods cause a histamine reaction for me.

Today has been pretty hard, but I’m hoping it will get easier. Snacking is the biggest issue right now as I don’t have much variety. I’m also not too stoked about the protein options. But, at the end of the day, this is all for the betterment of my health.

I’ve made plum sauce by cooking down about 5 plums in 1/2 cup of water and I made cod tacos using romaine. I have also made little seasoning packets using straws for my purse just in case I need them.

Here’s to hoping for the best possible outcome and the salvaging of my health!

 

GI Follow-Up Appointment Results 8/4

This morning I had my second follow-up appointment since being released from my hospital stay at the end of May. I am 3 weeks off of prednisone and feeling pretty good.

I had bloodwork on 07/26/17 and all of my results are in normal ranges. My vitamin d is up around 57-58. My c-reactive protein is 3.1. And, my doctor confirmed that I can actually allow myself to feel good about my status.

I explained that I had been hesitant to be confident about how well I am feeling because I wasn’t sure if it was a lingering effect of the prednisone. Not the case. In fact, she said that should I continue this way, at my appointment next month they will schedule me for a sig scope to confirm healing of the mucousa.

As far as my doctors know right now, I am on mesalamine and a PPI. (We’re actually going to be getting me off the PPI now). I take some supplements and I exercise. I follow the Specific Carbohydrate Diet. They do not know about my nicotine experimentation.

I figure that should all go according to the plan I have laid out for myself in a previous post, I will eventually wean off the nicotine as well. It’s certainly better than biologics at the moment.

I just hit up Trader Joe’s for the first time and scored free bananas from BJs, so I have a lot of baking to get to. I’ll be in touch soon. Thanks for reading!