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UC Remission Status Update

Please don’t mind any misspelled words or poor grammar as I type this on my cell phone. I recently had my 6 month GI visit in April and wanted to share the results. Thus far, everything is looking good. I requested a fecal calprotectin test (which apparently I’ll be paying for out of pocket), and I scored <16 – which is basically what someone without IBD would score.

I was so happy you would have thought I won the lottery.

At my appointment, I discussed eventually getting off the mesalamine oral meds, but my doctor was not too happy with the idea. She said I have a much higher chance of keeping my risk for colon cancer low by staying on them as well as maintaining remission. At the very least, I will be attempting to get down to a maintenance dose eventually.

I’ve finally gotten back into the gym again and I’m trying to stay consistent. The DOMS (delayed onset muscle soreness) is so much worse now with the IBD and the fatigue can be worsened if I don’t watch myself. But, I’m going slow and paying attention to what my body is telling me. I figured the least I can do right now is try to take advantage of how low my weight is (finally normal and stable) and tone up to look good in a bikini again.

Obviously there are benefits to working out besides looks – and I’m speaking to weight lifting specifically here. The emotional impact is amazing and I’ve missed it dearly.

After almost exactly a year from being hospitalized for this disease, I have finally begun to feel like myself again. For a long time I have lived with a cloud over my head wondering when I would be struck down again and hospitalized. That’s not like me and I’m happy it’s lifting.

I successfully went on my first extended trip away from home and brought my own food. I survived. Now, I look forward to my trip in October to the SCD Rocks Conference on Westport, MA and my trip right after to Salem, MA. We will be planning a cruise soon as well. I NEED A BEACHY VACATION!

Anyway, thanks for reading. Here are some of my lab results:

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